The Perinatal Scope of Care Initiative

The Health, Medicine and Society (HMS) program and Ascend, policy programs at the Aspen Institute

The Aspen Institute’s Health, Medicine & Society and Ascend policy programs have undertaken the Perinatal Standard of Care Initiative, a two-phase project to address the ongoing national crises of deplorable maternal morbidity and mortality statistics and unacceptable infant mortality rates.

The work is ambitious: To develop the first comprehensive national standard of care for the perinatal period (defined as prenatal care through 12-months post-partum) designed to achieve an optimal outcome for all, with a particular focus on those individuals who have been most marginalized by existing systems. The project is not intended to result in incremental improvements to current practice – instead, its singular purpose is to reimagine — based on the evidence — how we can best support pregnant and parenting people and their babies during the most critical developmental window of their lives.

The Initiative is co-chaired by Nadine Burke Harris, MD, MPH, Chief Impact Officer, ACE Action Network and California’s first Surgeon General, and Jonathan B. Perlin, MD, PhD, MSHA, MACP, FACMI, FAMIA, President and CEO, Joint Commission. It is generously supported by the David and Lucile Packard Foundation, the W.K. Kellogg Foundation, the Pritzker Children’s Initiative, and Merck for Mothers.

The Crisis We Face

The urgency of this work cannot be overstated. Approximately 700 women in the US die each year from pregnancy or pregnancy-related complications; 84% or 588 of these deaths are preventable.¹ The disparities are even more stark: Black women are three times more likely to die from pregnancy-related causes than white women.² US Infant mortality rates are equally cause for alarm and concern. In 2023, the United States reported 20,162 infant deaths, with an infant mortality rate of 5.61 deaths per 1,000 live births – unchanged from 2022 but higher than the 2021 rate of 5.44.³ Significant racial disparities also persist, with infants of Black women experiencing the highest mortality rate at 10.93 per 1,000 live births, more than twice the rate for White (4.48) and Hispanic (5.03) infants.⁴

These statistics are not just numbers; they represent mothers, partners, families, and communities devastated by maternal and infant deaths and disease that should not occur in this country. While various efforts have addressed pieces of this challenge – prenatal care guidelines here, postpartum protocols there — no comprehensive, integrated standard exists that views a pregnant person and their baby as a unified unit of care throughout the entire perinatal journey and considers them as such.

Our Approach

The Initiative is divided into two Phases. Phase 1 — the planning process — is structured to create an in-depth workplan which, in turn, will serve as the framework for developing the comprehensive standard

of care itself (Phase 2). We are not, however, starting this process from scratch or ignoring existing expertise. Rather, we aim to build on current knowledge and ongoing efforts while acknowledging that incremental improvements alone are insufficient to reverse the nation’s unacceptably high maternal and infant morbidity and mortality rates, particularly among communities of color.

Three fundamental principles guide all our work:

• Mother-Centric and Two-Generational: The standard must reflect the lived experiences of those who know best — mothers and pregnant people — what is needed during the perinatal period to achieve optimal health outcomes not only for themselves, but also for their child and family. The evidence is clear: Family wellbeing and infant health are inextricably linked.
• Comprehensive Care Integration: The standard must extend beyond traditional medical services to include appropriate non-clinical supports typically provided outside the health sector – recognizing that best perinatal outcomes require addressing social determinants of health, mental health, economic security, and family support systems.
• Equity-Centered Focus: Priority attention must center on those who have faced the greatest systemic barriers within healthcare systems and who experience the poorest health outcomes as a result – particularly women of color, Indigenous people, those living in rural communities, and non-binary parenting individuals.

The Project Team

Ruth Katz, Executive Director, HMS

Marjorie Sims, Managing Director, Ascend

Chidi Jenkins, Senior Officer for Leadership and Public Policy, Ascend

Katie Gottschalk, Project Director, HMS

How can I support this work?

Sign up to receive project updates

Contribute literature, studies, expertise or information on the Perinatal Period in the US | perinatalstrategy@aspeninstitute.org

Reach out with any questions|perinatalstrategy@aspeninstitute.org

1. https://www.cdc.gov/mmwr/volumes/68/wr/mm6818e1.htm; https://www.cdc.gov/womens-health/features/maternal-mortality.html ↩︎
2. https://www.cdc.gov/womens-health/features/maternal-mortality.html ↩︎
3. https://www.cdc.gov/nchs/data/nvsr/nvsr74/nvsr74-07.pdf ↩︎
4. https://www.cdc.gov/nchs/data/nvsr/nvsr74/nvsr74-07.pdf ↩︎